Tag: rare diseases

Run for Hope to Benefit Carcinoid Cancer Research and Education

Get your running shoes ready for the 8th ANNUAL RUN FOR HOPE on Saturday, August 4, 2012.  The goal of the run is to raise awareness of carcinoid cancer, provide education, and give hope . . . while raising funds for carcinoid research and education and the …

Lexicon Pharmaceuticals Granted Orphan Drug Designation by FDA for Carcinoid Syndrome Treatment

Lexicon Pharmaceuticals, Inc. has been granted Orphan Drug Designation for telotristat etiprate (LX1032) by the U.S. Food and Drug Administration (FDA).  LX1032 is used to treat carcinoid syndrome, a chronic condition caused by neuroendocrine tumors,…

Multiple Endocrine Neoplasia (MEN) Type 1 Seminar Scheduled for June 2012 at Mayo Clinic

MEN, carcinoid, and neuroendocrine cancer patients, family members, caregivers, advocacy groups, physicians, and healthcare professionals are invited to attend the Multiple Endocrine Neoplasia Type 1 Seminar presented by American Multiple Endocrine…

Twitter Chat on Rare Disease Day to Focus on Carcinoid and NET Cancers

Join us on Rare Disease Day, February 29th, for a Twitter chat about NET (neuroendocrine tumor) cancers with Steven K. Libutti, MD, Director of Montefiore Einstein Center for Cancer Carein New York. The chat will begin at 2 pm, Eastern Time.

Follow @MontefioreNews…

14 Inspirational Carcinoid and Neuroendocrine Tumor Survivor Stories

Living with a rare disease is especially challenging on many levels.  Carcinoid cancer and neuroendocrine tumor patients are acutely aware of these challenges – including getting a proper diagnosis and finding a physician who specializes in treating…

Worldwide NET Cancer Awareness Day Update: Events from Australia to Europe to North America

Go around the globe for the second Worldwide NET Cancer Awareness Day (WNCAD) on November 10, 2011. Throughout that day, videos featuring NET events and experts will air on www.netcancerday.org  as the sun travels west, from Australia to Europe to North…

Breaking News: Steve Jobs, Co-Founder and Former CEO of Apple, Has Died

The Carcinoid Cancer Foundation and the carcinoid/NET community express their deepest sympathies to the family, friends and colleagues of Steve Jobs, former CEO of Apple, who died on Wednesday, October 5, 2011.  Mr. Jobs was diagnosed with an islet …

Racing for a Cause: Carcinoid Car Selected as Finalist in Sponsafier Competition!

Fantastic news!  The top ten finalists have been announced and the CARCINOID CAR is a Finalist in the Sponsafier competition! There are 15 days left to vote for the next Sponsafier Champion.  We need your help – please vote every day from today, October 5,…

New Feature for Medical Professionals on Carcinoid Cancer Foundation Website

The Carcinoid Cancer Foundation is pleased to announce that a new feature for the medical community has been added to its website, www.carcinoid.org.  The section is entitled Continuing Medical Education (CME).   Upcoming events include:

• The Penn

CNETS Canada Presents 2011 Halifax Neuroendocrine Conference for Patients and Medical Professionals

Carcinoid and neuroendocrine tumor patients and medical professionals are invited to attend the 2011 Halifax Conference, presented by the Canadian Neuroendocrine Tumour Society (CNETS). The conference will be held on Saturday, May 7 at the beautiful…