Tag: rare cancers
Cycling the C&O Canal for Carcinoid
When Diane and Dwight Mikulis cycle the 184 miles of the Chesapeake & Ohio Canal this summer, they will bring greater awareness to the rare cancer that Diane’s mother, Stella Mae Lux Behers, battled for six years after being diagnosed in 1996. Like …
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Neuroendocrine Cancer Survivor Featured on Discovery Fit & Health TV Show
THIS JUST IN: Tannis Brown, a pheochromocytoma patient and Vice President of the Pheo Para Troopers, will be featured on the Discovery Fit & Health Network on Monday, July 9 in a program titled Diagnosis: Dead or Alive.* The 60 minute show will focus…
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Mud Cats Little League Team Raises Awareness for Carcinoid Cancer and Funds for the Carcinoid Cancer Foundation
To the amazing Mud Cats Little League Team, their coaches, families and friends we say a huge THANK YOU!!! Raising awareness about carcinoid cancer and funds for the Carcinoid Cancer Foundation was the goal of the June 2, 2012 Loudoun County, Virginia…
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First Mobile App for Carcinoid and Neuroendocrine Cancer Community Goes Live
The first mobile app for carcinoid cancer and neuroendocrine tumor (NET) patients is now available for downloading on the iPhone, iPad, and Android! My NET Manager, a free app provided by Novartis Oncology, offers patients a unique opportunity to track…
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National Carcinoid and NET Patient Conference: Have You Registered?
Have you registered for the national carcinoid and NET patient conference in New Orleans, September 20 – 22? The hotel is over 90% booked and registration is nearing capacity! This is a wonderful opportunity to learn more about carcinoid and …
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More Things Zebra for the Carcinoid and Neuroendocrine Tumor (NET) Community: From the Everyday to the Extraordinary
Why the zebra for carcinoid and neuroendocrine cancer awareness? In medical school, students are told, “When you hear hoof beats, think horses, not zebras.” Physicians are taught to focus on the most likely possibilities when making a diagnosis,…
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Social Media Connects Carcinoid and Neuroendocrine Cancer Survivors
Denise Passehl, a carcinoid cancer survivor, will share her experience with social media when she participates in the 140 Characters Conference on April 23 in Des Moines, Iowa. The focus of the conference, designed by Jeff Pulver, is how “real time technology…
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Run for Hope to Benefit Carcinoid Cancer Research and Education
Get your running shoes ready for the 8th ANNUAL RUN FOR HOPE on Saturday, August 4, 2012. The goal of the run is to raise awareness of carcinoid cancer, provide education, and give hope . . . while raising funds for carcinoid research and education and the …
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Lexicon Pharmaceuticals Granted Orphan Drug Designation by FDA for Carcinoid Syndrome Treatment
Lexicon Pharmaceuticals, Inc. has been granted Orphan Drug Designation for telotristat etiprate (LX1032) by the U.S. Food and Drug Administration (FDA). LX1032 is used to treat carcinoid syndrome, a chronic condition caused by neuroendocrine tumors,…
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Multiple Endocrine Neoplasia (MEN) Type 1 Seminar Scheduled for June 2012 at Mayo Clinic
MEN, carcinoid, and neuroendocrine cancer patients, family members, caregivers, advocacy groups, physicians, and healthcare professionals are invited to attend the Multiple Endocrine Neoplasia Type 1 Seminar presented by American Multiple Endocrine…
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