Author: The Carcinoid Cancer Foundation (CCF)
October Luncheon with the Experts in New York City for the Carcinoid and Neuroendocrine Tumor Community
Join fellow carcinoid and neuroendocrine tumor (NET) patients and three medical experts for Luncheon with the Experts in New York City on Sunday, October 16, 2016. This special program was initiated and is sponsored by the Big Apple NETs support group,…
READ MORESeeking Carcinoid Syndrome Patients for New Publication
Carcinoid Syndrome Patients: Share Your Journey — Can you help us to raise awareness about carcinoid syndrome?
Health Monitor Network, in collaboration with the Carcinoid Cancer Foundation, is producing a Guide to Living with Carcinoid Syndrome…
READ MOREShow Your Stripes by Contributing to Carcinoid and NET Research
Dear Friends,
Don’t miss this opportunity to Show Your Stripes by participating in the first ever Project Zebra: Real-World Patient Journey Research for Carcinoid and Neuroendocrine Tumors in the United States.
The Carcinoid Cancer Foundation…
READ MORENeuroendocrine Tumor Patients and Clinical Trials — Seeking Volunteers for Interviews
A pharmaceutical partner has commissioned a research company to try to understand how clinical trials can be carried out in a way that better suits carcinoid/neuroendocrine tumor patients, their families, and the physicians who treat them. The research…
READ MORELos Angeles Neuroendocrine Tumor Patient Education Conference 2016
Join neuroendocrine tumor (NET) patients and family members, NET cancer expert physicians, and members of the healthcare community on Saturday, June 25, 2016 for a free, one-day conference at Cedars-Sinai Medical Center in Los Angeles. The conference…
READ MORENew Survey for the Carcinoid Syndrome Community
Dear Friends,
We are excited to invite you to participate in the new Carcinoid Syndrome Impact Survey, which is designed to help better understand the impact that carcinoid syndrome has on patients’ lives, while also exploring physicians’ treatment…
READ MOREHolly’s Story: Taking Control of Carcinoid Cancer
Have you ever felt that it is difficult to “put everything together” when it comes to managing a chronic illness?
Holly, a carcinoid cancer patient and user of Carcinoid NETs Health Storylines, talks about how she takes control of her condition using a …
READ MOREOne Step Closer in the US to Peptide Receptor Radionuclide Therapy, PRRT, for Neuroendocrine Cancers
The clock is ticking!! With Advanced Accelerator Applications’ completed New Drug Application (NDA) submission of Lutathera to the U.S. Food and Drug Administration last week, a decision from the FDA is expected by early 2017. Additionally, an Expanded…
READ MOREJune Luncheon with the Experts in New York City for the Carcinoid and Neuroendocrine Tumor Community
Carcinoid and neuroendocrine tumor (NET) patients have a unique opportunity to hear from three medical experts during Lunch with the Experts in New York City on Sunday, June 12, 2016. This special program was initiated and is sponsored by the Big Apple…
READ MORENews and Notes for the Carcinoid and Neuroendocrine Tumor Community, April 2016
Rare Neuroendocrine Skin Cancer Treated by Immunotherapy
Merkel cell carcinoma, a rare neuroendocrine virus-linked skin cancer, has been added to the list of cancers that can be treated by immunotherapy. Scientists who led the clinical study of the…
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