Fatigue
The Cleveland Clinic has written up and excellent description about cancer related fatigue
To view Click here
Financial Assistance Resources
The following organizations offer information about financial, travel and housing assistance for cancer patients. Each organization has their own set of guidelines regarding approval for financial assistance. NOTE: The Carcinoid Cancer Foundation does not give financial assistance to individuals, however we may be able to guide you to appropriate resources that will give financial help. We suggest you call us at 888-722-3132 to further guide you.
The Lois Merrill Foundation is a nonprofit organization founded in 2007 in honor of Lois Merrill who passed away in 2006 from carcinoid cancer. Lois was a devoted wife, mother and school teacher whose passion for life and sincere desire to help others lives on through The LMF. The mission of The Lois Merrill Foundation is to help people affected by carcinoid cancer through funding research for new treatments, providing financial support for patients and their families, and promoting awareness and education for carcinoid and other rare cancers.
For information about financial resources available to patients, click here: http://www.theloismerrillfoundation.org/wecanhelp.html. Medical assistance grants are based on financial need. Grant requests are reviewed two times a year: on November 1 and May 1.
(February 1, 2007) HealthWell Foundation Launches New Program To Help Patients With Carcinoid Tumors Gaithersburg, MD – The HealthWell Foundation® is pleased to announce a new program to assist patients diagnosed with carcinoid tumors and symptoms related to carcinoid tumors. The HealthWell Foundation is an independent, non-profit organization working to reduce barriers to medical care for patients with chronic or life-threatening diseases. The new program provides financial assistance to help underinsured patients afford their co payments and other out-of-pocket costs for treatments for carcinoid tumors and related symptoms.
"As patients continue to face rising out-of-pocket medical costs, the HealthWell Foundation is working to help reduce financial barriers to care,” said Stephen M. Weiner, President of the HealthWell Foundation. "We have assisted more than 23,000 patients in over 22 disease areas and are excited to expand our program to help patients with carcinoid tumors afford their medical treatments as well."
Additional information about the new carcinoid tumors program and the HealthWell Foundation is available online at www.healthwellfoundation.org
Cancer Care "When you don't know where to turn", Cancer Care can help.
If you or someone you know has just been diagnosed with carcinoid cancer—or has been living with carcinoid cancer for some time—you may have questions or need support. This web site define the five areas of service they offer for carcinoid cancer patients and their families.
National Cancer Institute (NCI) Financial Assistance for Cancer Care.
Cancer imposes heavy economic burdens on both patients and their families. For many people, a portion of medical expenses is paid by their health insurance plan. For individuals who do not have health insurance or who need financial assistance to cover health care costs, resources are available, including Government-sponsored programs and services supported by voluntary organizations.
ABOUT THE BOOK: Carcinoid Cancer, Zebras and Stardust by Mary Girsch-Bock is the story of one person's relentless battle against carcinoid, and of the author's struggle to come to terms with the death of her beloved sister. Inside, you'll also find the words of some of the world's top carcinoid specialists, invaluable reference data, and a comprehensive list of the top carcinoid specialists. A portion of the proceeds from every order of this special edition will be donated to support the programs and activities of
The Carcinoid Cancer Foundation For more information and to order clickHERE or HERE
Rollercoaster
by Wayne Tefs
Published 2002
Both practical and spiritual, Rollercoaster is a must-read, not only for those suffering from cancer, but for their loved ones, caregivers and even for those few whose lives have gone untouched by cancer.
For more information and to order click HERE
Reviews: Practical & Spiritual; A must Read for all touched by cancer, April 22 2002
I devoured this book, staying up quite late to do so.
The author is very correct in telling how many many people diagnosed with an unusual and rare cancer react when they
learn they have Carcinoid.
As another person who was diagnosed in 1995, and who has
been very proactive in my treatment, I recommend this book
highly to all dealing with cancer -- not just the patients, but
also family members and friends. There is a great deal of very
useful and helpful information in this book.
Susan L Anderson, (Sunny Susan in AZ) April 26, 2002
This book is about carcinoid cancer from the inside out, by a teacher of literature, and is well crafted without being oppressively literary. The story is told straightforwardly and with courage.
Stephen Pazan, Carcinoid Fighter, April 29, 2002
SEA (California Patient Support Group) has published a concise, referenced, pocket guide to the diagnosis and treatment of Carcinoid, coauthored by Richard Warner, MD and Chip Rueben, MS. The book, titled Carcinoid Tumor: A Guide to Diagnosis and Treatment, (for physicians)
is a 5”x7” , tabbed, spiral bound, booklet. Their goal in producing this guide is to make these books available to as many physicians as possible.
Their goal in producing this guide is to make these books available to as many physicians as possible.
To obtain details on ordering a copy of this book Click Here
For additional information about ordering this booklet/guide contact Nickolette Way sea4carcinoid@msn.com
The Lois Merrill Foundation
American Society of Health-System Pharmacists
Practical & Spiritual; A must Read for all touched by