Home

Latest News

Surviving Carcinoid Cancer for More Than 3 Decades

Marilyn Thurston of Colorado may be the longest-surviving carcinoid patient in the United States and possibly the world, having been diagnosed over 30 years ago.  Her physician, Dr. Nicholas DiBella, created a special pin recognizing her tenacity. In 1986, Marilyn participated in the first clinical trial for Sandostatin.

Special thanks to Amy Matthew of The Pueblo Chieftain for sharing Marilyn's story of hope and positivity.  Read the article here.

Denied: Michael Farris' Journey with Insurance for Neuroendocrine Cancer Treatment

The good news is the very positive result at the end – but the road to getting insurance coverage for Michael Farris’ participation in the PRRT (peptide receptor radionuclide therapy) clinical trial at Excel Diagnostics in Houston, Texas, was fraught with difficulty. Read more

Mount Sinai in New York City Offers Gallium-68 Imaging for Carcinoid and Neuroendocrince Cancer Patients

When Brian Hakimian had the 68Gallium DOTATOC PET/CT scan at the Icahn School of Medicine, Mount Sinai in New York City on January 14, 2015, he became the first carcinoid patient to undergo this novel imaging test at a northeastern facility. Now in clinical studies in the United States, the Gallium-68 scan enables physicians to diagnose, stage, and monitor response to treatments in carcinoid and neuroendocrine cancer patients. Read more

Spotlight on Guest Bloggers for CCF

The Carcinoid Cancer Foundation is pleased to announce that we are going to feature guest contributors to our blog during 2015. Intelligent Patients – Just What the Doctor Didn’t Order by Ronny Allan, a carcinoid cancer patient from the UK, is our first guest blog post. Read the post here.

Surgery and Treatment Options for NET Cancers

What are the surgical and treatment options for carcinoid and neuroendocrine tumor patients?  For patients with tumors that have spread to the liver which therapies should be used to improve quality and quantity of life? How do patients benefit from clinical trials? There is an explosion of technologies coming not only in the diagnostics but also in the treatments of these rare cancers. View the video below: