Latest News

"The Waiting Room," a Lung Carcinoid Survivor's Story

“We are survivors here, in the waiting room.” Lisa Pawlak, a lung carcinoid survivor, shares her inspiring story in the September/October 2015 issue of Coping with Cancer Magazine.  Read Lisa's article here.

Smart Patients Carcinoid and Neuroendocrine Tumor Community

The Carcinoid Cancer Foundation is excited to announce a new online community for carcinoid and neuroendocrine tumor (NET) patients, their families and friends. We are partnering with Smart Patients to build this community and hope that combining CCF's experience educating patients about carcinoid and NET cancers with Smart Patients’ experience with online peer support will result in more patients getting information they need even faster. Join Smart Patients, ask a question, and support others who can learn from you: www.smartpatients.com/carcinoidRead more

Lexicon’s Carcinoid Syndrome Treatment Meets Primary Endpoint in Phase III Clinical Trial

Lexicon Pharmaceuticals Inc. has announced that the pivotal phase III clinical trial, TELESTAR, of its oral drug candidate telotristat etiprate met the primary endpoint in treating cancer patients with carcinoid syndrome that is not adequately controlled by the current standard of care. Read more

Surviving Carcinoid Cancer for More Than 3 Decades

Marilyn Thurston of Colorado may be the longest-surviving carcinoid patient in the United States and possibly the world, having been diagnosed over 30 years ago.  Her physician, Dr. Nicholas DiBella, created a special pin recognizing her tenacity. In 1986, Marilyn participated in the first clinical trial for Sandostatin.

Special thanks to Amy Matthew of The Pueblo Chieftain for sharing Marilyn's story of hope and positivity.  Read the article here.

Spotlight on Guest Bloggers for CCF

The Carcinoid Cancer Foundation is pleased to announce that we are going to feature guest contributors to our blog during 2015. Intelligent Patients – Just What the Doctor Didn’t Order by Ronny Allan, a carcinoid cancer patient from the UK, is our first guest blog post. Read the post here.